Rare Disease Day

This is my second post of the day and I don’t think I have ever done this before, but I wanted to acknowledge that today is Rare Disease Day. Bethany has cystic fibrosis and it is considered a rare disease. There are only about 70,000 people in the world living with cystic fibrosis and about 30,000 of them live in the United States. Cystic Fibrosis can be a very time consuming disease – especially the time Bethany spends doing her nebulizers and vest treatments. But, it has paid off for her and Bethany is doing very well. We are very thankful for her health and know we are blessed. 

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