The Vest

I was hoping to get verbal approval this week, but we are still waiting – – maybe next week. Patience, Patience.

However, we did get something this week – – “the Vest”. It was delivered by FedEx and caused quite a bit of excitement at our house. Bethany had picked out a pink vest as that is her favorite color at this time. She couldn’t wait to try it out. Bethany has cystic fibrosis and we have been doing hand PT on her two to three times a day for years. We were waiting until she was a little bigger to get the vest and at almost six, we, along with her pulmonologist, decided it was time. We also waited a while as there is some controversy over which is best — hand PT or the vest. We knew that our insurance company would only help cover one Vest machine (the actual vest she wears can be upgraded in size as she grows). And, at approximately $16,000.00 a unit, we wanted to make sure we waited for the most up-to-date model.

Amazing how something new can be so much fun at first. After getting training from In-home Services, I hooked Bethany up for her first session, and everyone stood around watching while Bethany made animal sounds and sang songs that sounded hilarious because of the vibrations. Hopefully, she will continue to enjoy PT using the vest. Even though I know the newness will wear off, at this moment she thinks it’s fun compared to an hour of hand PT.

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Benefit Concert

The benefit concert went really well on Saturday. We had a good turnout and my son, Michael, played a variety of music – from Ragtime to Rachmaninoff. I was so proud and grateful that Michael cared enough that he took the time to do this concert for us. As I watched him play, and then looked around at my children, I again felt so blessed – – Bethany resting on me, Claire with her head resting on Bethany, Sarah signing “I love you” to Emily (because I told her she better be QUIET), and Caroline and Sarah giving each other little smiles. It is a beautiful sight to see my older children and little ones all together supporting their brother. 
A love offering was taken and $1,860.00 was donated for Bella and Allysen. I was astounded. I never dreamed that people would be so generous. I am so thankful. We have truly been blessed.
 
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