Archives for January 2014

Feeling Better

Bethany is feeling so much better already. I am surprised at how quickly she has improved this time. We are still having her do her vest a little longer than the norm,  and she still has a long way to go on the antibiotic, but she definitely is doing so much better. Eating is still a problem, but that is not unusual. I actually spent over sixty dollars buying some high calorie drinks (350 per 8 oz.) and they arrived today. I chilled them and gave her one. She hated it. She said it was going to make her sick. I got half of it in her and that was it. I guess a waste of money. I don’t think she will be drinking many of them. 
Since Bethany has been sick, and it has been really cold, we have spent a lot of time reading — a pleasant thing to do on a cold snowy day with a sick child. We read Here’s A Penny by Carolyn Haywood, which happened to bring up the subject of being adopted and how special it is — Penny is adopted and wants his parents to adopt a big brother for him. We also read “C” is For Cupcake by Carolyn Haywood and we are now on the last chapter of Annie Pat and Eddie also by Carolyn Haywood. I keep finding more and more Carolyn Haywood books to read and most of them are already in our home library. We are really enjoying all of them and if Bethany had her way I would read them almost all day long. 
Andrew has spent a lot of time putting puzzles together and playing with his Snap Circuits. He has made all kinds of neat things with them. Now Bethany, Caroline and Jordan are starting to want to play around with his Snap Circuits and they have definitely had fun with them. 


It has been so cold the past couple of days that most of the kids don’t want to go outside — except Bethany. So, they had a baking day. Bella just watched and then ate a big cookie. 







A CF Week

This week has been pretty consumed by cystic fibrosis. Bethany got a cold and then a slight cough and then she was coughing so much she was gagging and vomiting. A simple cold isn’t always a simple cold when you have CF. So, now she is on 21 days of antibiotic along with extra nebulizer treatments each day, and 4 vest treatments along with two inhaler treatments. To make matters even worse, she just won’t eat. She never eats much and it is always a job to get food into her, but this week has been awful. I think I have spent just about my entire day today standing over her trying to get her to eat something — anything — 45 minutes to get one banana in her and that was her entire breakfast. This is a kid that needs 2,500 calories each day according to her nutritionist  — kids with CF need extra calories. It is so hard to get any weight on her and lung function is directly related to weight. Don’t ask me why so many kids with CF don’t want to eat, but it is very common. So, this has been a week of treatments and me pushing and pushing food — which isn’t working very well. At least I can get her to drink orange juice and maybe a PediaSure — that adds a few calories. I will certainly be glad when she is better.


Bella is doing so well, lately. Every single day when Bill comes home she says “Hi, Dad,” as he walks in. Bill loves it. Here she is dressed up in a princess costume — she definitely thinks she is a princess and we do, too.



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